My body seems to not be satisfied with the conditions I have it seems to want me to get a record in the Guinness Book Of World Records. My Doctors are also finding new conditions for me. I don't really help matters; I have some symptoms that don't match any of the problems I've already got so I go in search for answers to what they might be.
For University I found it useful to write out all my conditions, allergies and medications for the Uni, for my carers and for me.
So far:
Medical Conditions:
POTS (Postural Orthostatic Tachycardia Syndrome)
EDS (Ehlers Danlos Syndrome)
Hypermobility
Hypermobility of the bowel
Four prolapsed discs
Scheuermans disease
Degenerative disc disease
Left Ankle instability - surgery gone wrong
Migrainous vertigo
Hearing loss – I have hearing aids
Tinnitus
Anemic
Asthma
CPRS (Chronic Regional Pain Syndrome)
Vitamin D deficient
Allergies:
Ibuprofen
Carrots
Black pepper
Cinnamon
Nutmeg
Smoked salmon
Popcorn
Orange squash
Baked Beans
Caffeine
Dairy
Allergic to some plasters, perfumes, creams and washing powders
Medication:
Amitriptyline – 100mg – evening only
Paracetamol – 2 tablets when needed up to 4 times a day
Midodrine – 5mg x 3 times a day
Pregabalin – 150mg x 2 times a day
Domperidone - 1 tablet up to 4 times a day
Erythrocin – 1 tablet x 2 times day
Codeine – 15mg x 2 when needed up to 4 times day
Cocodomol – 10/500 x 2 when needed up to 4 times a day
Codydromol – 10/500 x 2 when needed up to 4 times a day
Erythrocine – morning and evening
Pro bio 7 – evening only
Seritide inhaler – 2 times a day but increase to up to 4 times a
day if unwell
Tramadol - 50mg 1 or 2 tablets as and when needed
Just in case you are worried about these medications, I DO NOT take them all at the same time. Also, the allergies written in red are the most important and I have the worst reaction to them.
People with Hypermobility are more likely to have certain other conditions such as EDS, POTS, etc... although there is no real reason for this (as far as I am aware).
All of these conditions are what is difficult. I have only been diagnosed with most of these in recent years and I am still trying to understand them, how they work, what my reactions are, what the symptoms are, how I can cope with all of them at university, how each one can react with the others and how the medications work and what their side-effects are.
*huggles* for everyone!!!
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