Lovely Linda

So, my new carer started yesterday. I haven't spoken to anyone from the agency but the social workers managed to find this new agency and arrange to have actual 'teenage suitable' times instead of 'early bird special' times.

My carer comes everyday from 18.00-19.30 and at weekends the between 10.00-11.00. 

Yesterday Linda came round; she's really friendly, chatty, up for a laugh, happy, helpful, caring and understandable. She told us that she is my primary carer. We spent half an hour chatting yesterday with my mum and then we proceeded to wash me, I was explaining what to do as we washed me but I started to slip and I was getting more hurty so my mum had to come in and hold me. Linda was great though, she was helping me to keep my dignity and modesty whilst washing me and she took all my 'orders' (instructions) and took everything on board. 

My mum was at home yesterday so she was making my dinner which is what Linda would normally do so, because we washed my hair, Linda plaited it for me because its getting more and more painful for me to do it myself. Whilst she did so we carried on chatting and she stayed an extra half an hour just to talk to me. I like that because not only are Carers supposed to help me to do things and care for me but they are also company for me which, when my mums not home, is what I need. I haven't seen my friends since uni finished in mid may and my sister has moved out so if I want to do anything I rely on my mum or my sister (when she's around) but because my mum isn't here I'm all on my own so it's nice to have someone to talk to and not want to rush me so they can go home.

This morning my carer came in whilst I was sleeping, we have a key safe (because I'm either unable to get to the doer or I'm asleep like this morning) and she brought me a drink and breakfast in bed because I'm in a lot of pain when I wake up and due to my POTS I have to drink and eat before I get out of bed. This morning I was in more pain than normal though. She also made sure I took my meds,the other 'carers' (not sure if I'd call them that because if they did come they barely cared) just rushed me, hurt me and left before they were supposed to.

Linda stayed longer again today because we were chatting :) it's nice to have someone who wants to be here and seems to really care about the people she looks after.

Not having the best day though, my joints are achy and I'm still in a lot of pain :( 

*huggle* for everyone!!!